| R 189 |
| 2023 -- S 0831 Enacted 03/23/2023 |
| S E N A T E R E S O L U T I O N |
| COMMEMORATING "TURNER SYNDROME AWARENESS MONTH" IN THE STATE OF RHODE ISLAND |
Introduced By: Senators Miller, F. Lombardi, Ciccone, DiMario, Gu, Murray, Lauria, Raptakis, and Britto |
| Date Introduced: March 23, 2023 |
| WHEREAS, Turner Syndrome is a rare, noninheritable chromosomal condition that |
| affects approximately 300 women in Rhode Island, with 1 in 2,000 female-affected births |
| occurring world-wide and over 1,000 baby girls born annually with the Syndrome; and |
| WHEREAS, Individuals with Turner Syndrome often have nonverbal learning |
| disabilities, early ovarian failure, hearing problems, and are short in stature, which can result in |
| reduced functional skills and job retention; and |
| WHEREAS, In addition, the risk for acute aortic dissection is increased by more than a |
| hundredfold in young and middle-aged women with Turner Syndrome, but with early diagnosis, |
| support services and the help of medical specialists, females with Turner Syndrome can live a |
| long and healthy life; and |
| WHEREAS, Growth hormones, estrogen supplements, occupational therapy, and early |
| monitoring of medical issues involving the heart, kidneys and thyroid, diabetes, hearing loss and |
| more, produces positive outcomes and essential quality of life benefits; and |
| WHEREAS, The signs of Turner Syndrome should be detected during a girl's first few |
| years of life for the best possible outcomes however, currently, the average age for diagnosis of |
| Turner Syndrome is between 7 and 17; and |
| WHEREAS, Greater awareness for this condition and its many complications will allow |
| health care providers to diagnose this condition much earlier and will allow for more research in |
| order to better treat the health issues affecting women with Turner Syndrome; now, therefore be it |
| RESOLVED, That this Senate of the State of Rhode Island hereby commemorates |
| “Turner Syndrome Awareness Month” and urges the State’s citizens and medical professionals to |
| share experience and information to raise public awareness about Turner Syndrome; and be it |
| further |
| RESOLVED, That the Secretary of State be and hereby is authorized and directed to |
| transmit duly certified copies of this resolution to Utpala Bandy, MD, MPH, Interim Director at |
| the Rhode Island Department of Health, the Turner Syndrome Foundation, and Ms. Nicole Topp. |
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| LC002488 |
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