| R 249 |
| 2016 -- H 8149 Enacted 05/24/2016 |
| H O U S E R E S O L U T I O N |
| EXTENDING THE EXPIRATION DATE AND AMENDING THE MEMBERSHIP OF THE SPECIAL LEGISLATIVE COMMISSION TO STUDY THE CREATION OF A COUNCIL TO COORDINATE RESOURCES FOR PROVIDING CARE TO INDIVIDUALS WITH RARE DISEASES |
| Introduced By: Representatives Kazarian, Bennett, Chippendale, Azzinaro, and Amore |
| Date Introduced: May 04, 2016 |
| RESOLVED, That the special legislative commission created by resolution No. 408 |
| passed by the House of Representatives at its January session, A.D. 2015, and approved June 18, |
| 2015, entitled "House Resolution Creating a Special Legislative Commission to Study the |
| Creation of a Council to Coordinate Resources for Providing Care to Individuals with Rare |
| Diseases" is hereby authorized to continue its study, and said commission shall expire on June 24, |
| 2019; and, be it further |
| RESOLVED, That the composition of said commission is hereby amended to consist of |
| twenty (20) members: three (3) of whom shall be members of the Rhode Island House of |
| Representatives, not more than two (2) from the same political party, to be appointed by the |
| Speaker of the House; one of whom shall be the Director of the Rhode Island Department of |
| Health, or designee; one of whom shall be the President of the Hospital Association of Rhode |
| Island, or designee; two (2) of whom shall be individuals diagnosed with a rare disease, to be |
| appointed by the Speaker of the House; one of whom shall be a caregiver of an individual |
| diagnosed with a rare disease, to be appointed by the Speaker of the House; one of whom shall be |
| the Associate Dean of Medicine for Public Health and Policy at the Alpert Medical School at |
| Brown University, or designee; one of whom shall be the President of the Rhode Island Public |
| Health Association, or designee; three (3) of whom shall be representatives of Rhode Island |
| health insurance companies, to be appointed by the Speaker of the House; two (2) of whom shall |
| be representatives of the Pharmaceutical Industry, to be appointed by the Speaker of the House; |
| one of whom shall be a representative of the biotech industry, to be appointed by the Speaker of |
| the House; three (3) of whom shall be physicians, to be appointed by the Speaker of the House; |
| and one of whom shall be a representative from a rare disease organization, to be appointed by |
| the Speaker of the House; and be it further |
| RESOLVED, That the expiration date authorized by resolution No. 408 and passed by |
| the House of Representatives at its January session, A.D. 2015, and approved June 24, 2015, be |
| and the same is hereby rescinded. |
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| LC005721 |
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