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2002 -- S 3014 | |
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LC03152 | |
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STATE OF RHODE ISLAND | |
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IN GENERAL ASSEMBLY | |
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JANUARY SESSION, A.D. 2002 | |
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S E N A T E R E S O L U T I O N | |
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DECLARING MAY 15, 2002 "STURGE-WEBER SYNDROME AWARENESS DAY" IN THE | |
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STATE OF RHODE ISLAND | |
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Introduced By: Senators Blais, Kells, J Cicilline, Polisena, and Perry | |
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Date Introduced: May 15, 2002 | |
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Referred To: Senate read and passed | |
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WHEREAS, Sturge-Weber Syndrome is a congenital disorder, recognizable by a port |
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wine stain on the face and/or body. Babies born with Sturge-Weber can suffer from many |
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complications, including glaucoma, blindness, mild to extreme seizures, mental retardation, and |
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paralysis; and |
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WHEREAS, Created in 1987, the Sturge-Weber Foundation started as a support group |
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for families all over the United States and in many parts of the world affected by this Syndrome. |
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The Foundation seeks to improve the quality of life for individuals with Sturge-Weber Syndrome |
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by acting as a clearinghouse for information, providing emotional support, and facilitating |
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research; and |
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WHEREAS, Overemphasis on the importance of beauty in our current culture adds to the |
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emotional burdens of children and adults with Port Wine Stains, Sturge-Weber, and other |
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associated syndromes such as Kippel-Trenaunay. Progress in research has been made and the |
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Foundation is determined to press on to find out everything it can about this family of syndromes; |
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now, therefore be it |
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RESOLVED, That this Senate of the State of Rhode Island and Providence Plantations |
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hereby declares May 15, 2002 “Sturge-Weber Syndrome Awareness Day” in the State of Rhode |
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Island. This body encourages progress in research and the search for a cure; and be it further |
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RESOLVED, That the Secretary of State be and he hereby is authorized and directed to |
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transmit a duly certified copy of this resolution to The Sturge-Weber Foundation. |
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LC03152 | |
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