2019 -- H 5418

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LC001222

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     STATE OF RHODE ISLAND

IN GENERAL ASSEMBLY

JANUARY SESSION, A.D. 2019

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A N   A C T

RELATING TO HEALTH AND SAFETY -- LONG-TERM HEALTH CARE GOALS AND

VALUES--THE RHODE ISLAND ALZHEIMER'S DISEASE BRAIN BANK TASK FORCE

     Introduced By: Representatives Shekarchi, Ackerman, Jackson, Casimiro, and Caldwell

     Date Introduced: February 14, 2019

     Referred To: House Health, Education & Welfare

     It is enacted by the General Assembly as follows:

     SECTION 1. Chapter 23-17.15 of the General Laws entitled "Long-Term Health Care

Goals And Values" is hereby amended by adding thereto the following section:

     23-17.15-3. Alzheimer's disease brain bank task force established.

     (a) There is hereby created and established a task force to be known as "The Rhode

Island Alzheimer's disease brain bank task force" (the "task force"). The purpose of the task force

shall be to assess the need, desirability, and feasibility of establishing a brain bank for

Alzheimer's disease research and other research related to dementia-associated abnormalities of

the brain.

     (b) The task force shall consist of members as follows:

     (1) The director of the department of health, or designee;

     (2) The state medical examiner, or designee;

     (3) A representative from the Memory and Aging Program at Butler Hospital, to be

selected by the program's governing body;

     (4) A representative from the Robert J. and Nancy D. Carney Institute for Brain Science

at Brown University, to be selected by the institute's governing body;

     (5) A representative from the George and Anne Ryan Institute for Neuroscience at the

University of Rhode Island, to be selected by the institute's governing body;

     (6) A representative from the Center for Neurorestoration and Neurotechnology at the

Providence VA Medical Center, to be selected by the center's governing body;

     (7) The Norman Prince Neurosciences Institute at Rhode Island Hospital, to be selected

by the institute's governing body; and

     (8) A representative from the Rhode Island funeral directors association, to be selected by

the association;

     (c) The membership of the task force shall receive no compensation for their services.

     (d) On or before December 1, 2019, the task force shall submit a written report to the

governor and to the general assembly detailing its activities and providing recommendations

relating to the need, desirability, feasibility and costs of establishing a brain bank for Alzheimer's

disease research and other research related to the human brain and diseases and abnormalities of

the brain. The general assembly shall assess this report and make determinations on what further

actions, if any, should be taken to develop or support a brain bank. In the event the general

assembly determines to take further action regarding the brain bank, the task force shall remain in

place to assist in facilitating and implementing those actions.

     SECTION 2. This act shall take effect upon passage.

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EXPLANATION

BY THE LEGISLATIVE COUNCIL

OF

A N   A C T

RELATING TO HEALTH AND SAFETY -- LONG-TERM HEALTH CARE GOALS AND

VALUES--THE RHODE ISLAND ALZHEIMER'S DISEASE BRAIN BANK TASK FORCE

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     This act would establish a task force to assess the need, desirability, feasibility and cost

of establishing a brain bank for Alzheimer's disease research and other research related to

dementia-associated abnormalities of the brain.

     This act would take effect upon passage.

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LC001222

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